Trustworthy NHIN: Privacy Commentary
Privacy Commentary by Latanya Sweeney
Beyond igniting adoption of electronic medical records, the American Recovery and
Reinvestment Act of 2009 also aims to build a privacy-preserving Nationwide Health
Information Network (NHIN) by 2015 and provides an abundance of funds, political will
and policy attention to get it done. An optimal NHIN maximizes data sharing while
providing guarantees of privacy protection. So, it is surprising that the recently released
list of requirements from the Centers for Medicare and Medicaid includes no privacy
incentives and the current NHIN approaches from the Office of the National Coordinator
make it unlikely Americans will have privacy or utility.
Sweeney, L. "Privacy Issues Overlooked". Modern Healthcare, September 9, 2010.
Earlier version: Will current plans for the Nationwide Health Information Network undermine patient privacy and trust? Harvard University. AdvanceHIT Project. White Paper 1003. Cambridge: March 2010. (PDF)
Series: AdvanceHIT Trustworthy Designs for the Nationwide Health Information Network.