Workshop on the Ethics of Re-identification

What are the benefits and harms and practices to follow when putting names to people in data?


May 10, 2013
8am-2:30pm

Harvard University, 1730 Cambridge St, Room 020, Cambridge, MA (map)

Topics to Workshop

  1. Protecting individuals whose data are re-identified.
  2. Interplay with data sharing.
  3. Making re-identification results public and scientific publication.
  4. Publication and reproducibility of re-identification results and scientific value.
  5. Are re-identified results now confidential?
  6. Direct contact with re-identified subjects.
  7. Legal maneuvers.
  8. Validity and scoring methods.

    Other topics | References to share | Join mailing list | Welcome

Agenda

Continental Breakfast 8am

Welcome (10 min) 8:15am
Latanya Sweeney and Julia Brody

Meet and Greet (60 min) 8:30-9:30am
Invited guests introduce themselves and their interest or expertise in the topic.

Re-identification (30 min) 9:30-10:00am

  • Introduction to mechanics and basic issues
  • Examples
  • General discussion (5 minutes)

Brainstorming Sessions: (120 minutes) 10:00-12:00pm
See list of 8 discussion topics above.

Lunch: 12:00-12:30pm
Informal discussions.

Perspectives on Re-identification Practices (110 minutes) 12:40-2:20pm
Reflections focusing on various professional perspectives on the issues and topics as a whole.

  • Ethical
  • Legal/Regulatory
  • Stakeholder, Data holder, Participant
  • Computational, Statistical

Closing Remarks

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